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Instructions for Filling in this PageEditTo edit this page you will need to find the edit button located at the top right corner of this page. It´s just like word processing like you normally do at your desktop word processor, the main difference being you´re doing it online.'Click the edit button and you will be in full control of what´s going on in this page. Never forget: Great power brings great responsibility. You can make mistakes, as long as you try to correct them.
As you click the edit button you will find yourself in the visual mode. You may toggle between the "source" and "visual" mode, but we do recommend you keep it simply stupid, staying in the visual mode. Do not change the sections previously created, unless strictly necessary. Sections already created such as Summary, Symptom Description, etc. seem enough to produce brilliant scientific approaches. Edit or add new sections ONLY if you´re pretty sure they will be useful and consistent with the whole. If not, try to make information in each section more and more accurate. That will be your most wanted contribution to this page.
By default the system will take you to the visual mode. You have many tools, at the right side of the screen, you can use such as:
- Photo (add photos one by one)
- Gallery (a sophisticated way of adding multiple photos)
- Slideshow (a more sophisticated way of adding multiple photos)
- Slider (An even more sophisticated way of adding multiple photos)
- Video (Adding video from Youtube, Vimeo, or others)
- Table (Which you can use to present data in an organized way or other information)
Structured and scientific information is handled better off in the form of pure text; be economic when it comes to the use of multimedia tools, such as the above mentioned.
Add categories to the page whenever possible. Keep it simple. Always categorize and summarize your edits so we can find them. There can never be too much summarizing or categorizing on a wiki containing more than 7.000 rare diseases.
Good Luck and may you find a cure for this rare disease, for its long been needed.
An ordinary guy among extraordinary people 11:07, December 22, 2011 (UTC)
Please add a brief description of this rare disease.
Please add detailed description of the symptoms originated by this rare disease.
Please add photo evidence of the symptoms described above.
Please add video evidence of the symptoms described above.
Diagnosis and DetectionEdit
Please add methods and procedures for diagnosis and detection of this rare disease.
Scientific Findings SummaryEdit
Please add a brief summary of scientific findings on this rare disease: its origins, its causes, and its possible path for a cure.
Puzzle Pieces I : Associated Chromosomes and GenesEdit
Please add scientific knowledge about the chromosomes and genes associated to this disease.
Puzzle Pieces II : Chromosome and Gene Regular FunctionementEdit
Please add scientific knowledge about the chromosomes and genes regular functionement associated to this disease.
Puzzle Pieces III: Chromosome and Gene DisfunctionEdit
Please add scientific knowledge about the chromosomes and genes disfunction that gives origin to this disease.
Puzzle Pieces IV: EvolutionEdit
Please add scientific knowledge on how this rare disease develops trough the years until it eventually leads to death.
Sources: Bibliography and DocumentationEdit
Please add sources for further and more detailed information. If an information is available online provide the link. If available offline provide the Author, Year of Publication, Title and Publisher.
Sites of InterestEdit
Please add sites, portals, etc. online that may add something to finding a cure for this rare disease.
Please go to our profiler page, and add the contacts of scientists, researchers, labs, etc. investigating this subject. Fill in the appropriate information. Some fields are required; some are not. Publish the profile and copy the link of the published profile into this section.
Drugs, Medicines and Remedies Commercially AvailableEdit
Please add medicines, drugs, remedies and treatments related to this disease, that are commercially available. Link them to the original site/source. If not commercially available please use the section bellow.
Drugs, Medicines and Remedies under Research and DevelopmentEdit
Please add medicines and treatments related to this disease that are not commercially available; currently at the stage of research and development. Link any mention you make to the original site or source of information. If commercially available please use the section above.
Please provide treatments available, caring for multidisciplinary and integrated approaches. Be as specific as you can citing your sources.
Similar Diseases or Similar Genetic DisfunctionEdit
Please suggest similar genetic disfunctions, either human or non-human, that we should look at in order to find a cure for this rare disease.
Please add treatment centers available. Include contacts. Link any mentions you make to the online source if available.
Financial Aid and SponsorshipsEdit
Please add fundships available, linking any mentions you make to the original source
Please add methods and procedures for family support. These may include videos, documents, and links to organizations or other portals.
Please add it here.
Please add the methods and procedures necessary for an effective and definitive cure for this rare disease